Monday, June 22, 2015

My Motivational Monday

 I woke up this morning to my left side of my body immobile. I could barely move my left side of my body while lying in bed and I could barely see. This prompted me to make a phone call to my neurologist and call out of work: something that I hate to do. Living with Neuromyelitis Optica can really put a dent in my overall happiness; especially when it means that my attendance and productivity are in jeopardy. However, I have to ability to change the way I think for the best outcome in my life. Here are five things I do for My Motivational Monday (when I’m feeling terrible)
Every night we go to sleep not knowing what the next day will bring. I go to bed with the thought of not knowing what my health will be like the next day. After living with Neuromyelitis Optica for so long I've developed a way to tell within the first 30 minutes if I will have a: great, good, bad or terrible day and I use a rating system.
    • Great- I wake up in my 'normal' pain (level 4-5). Brew some coffee, eat a light breakfast, take my two fur-children outside and get ready for the day on time. This is what I consider a "Great" Monday morning.
    • Good- (Pain level 5-6)I do everything minus maybe a few things from above. Maybe I won't have breakfast or drink my morning cup of joy.
    • Bad- (Pain level 7-8) I can usually tell if I might have a bad day based on my pain level. Usually my pain level and fatigue go hand in hand and I might drag through the day. I will go to work on a bad day, but ultimately feel under the weather and unproductive.
    • Terrible- This is the worst of all days. I can't move, I'm in too much pain and I am too tired to do anything. It'll take me 20 minutes just to email my bosses and inform them.
1. Prayer. I pray every morning, but on morning where I feel super terrible and unable to do anything I put my requests to God and talk to him. I ask him to give me the strength to carry on through the day even if it is the most simple of tasks. (Like being able to get to the bathroom before I pee all over myself and house).

2. Shower. Showers are glorious when you feel terrible. When I'm able to gather all of my strength to take a shower (or bath) I always feel refreshed and at ease afterwards. It motivates me to continue the day with a brand new thought. (I washed away my old thoughts)

3. Ice Water w/ Lemon and Lounge Clothes. I will admit that I don't always do this step to motivate me, especially on days like today when I know I'll be in bed all day. I always keep water with me on my nightstand, so I'll just drink that and instead of changing into comfy lounge clothes, I'll just pull out a pair of super comfy jammies! I'm clean and have fresh clothes on!

4. Light Reading. To keep my mind stimulated I do a little bit of light reading for an hour (on and off). Sometimes it's a book, blog post or something on the Internet. When I read I feel like I am doing something I feel great and it continues to motivate me throughout the day. Note: that if it is a very terrible day, I skip this portion and head right to #5.

5.Rest. I know that you may be thinking, "How is rest motivational"? Resting give your body time to heal to be motivated and well for the following morning. Taking time to just relax and nap (or sleep) can be so beneficial to your health and it's always important to feel balanced. I loved to nap on days I feel terrible. I'm at ease, I'm comfortable and motivated to be well for tomorrow.

Remember, everyone lives their life differently than you and we all have things that we consider to be motivational or not. These are 5 things that I consider to be motivational to me and my disease.

What is motivational to you?



  1. Thank you for stopping by my blog. I decided to check out your blog and I love it. I definetly want to read past entries! Following you now. :)

  2. Thank you so much, Amy! That means a great deal to me! <3


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