Wednesday, April 12, 2017

My Diagnosis- Blogs May 2006

Hospital Stay 2006


May 3rd, 2006 @ 8:10pm: It seems like I start every entry with "I don't understand". It's beginning to get really old. (Ugh). I had a 1:00pm "Nerve-ologist" appointment today. They conducted several tests involving long, small needles that were stuck into my muscles on my lower legs. The ankle hurt the most. I've had an extensive list of lab work done, urine test, EKG, MRI, CT Scans, X-Raya and so much more and they still have no idea what's going on. Doctors think that it is stress from my old math teacher, but he's gone now. Ugh, I wish they new. I'm tired of not being able to explain how I feel.

May 18th, 2006 @5:18pm: Ever just want to quit life? I do. I've probably had that feeling more than I'd like at this point. But, what about when you find out that your life will never be like it was? What do you do? How do you cope with all of these drastic changes? What can you do when you have some sort of neurological disorder that they doctors can't explain? How do you even begin explaining to your friends, friends you've been with for many years that you can't do the same things like before anymore. What. Is. Life? How do I explain my immune system? What can you do when radiologists and doctors say that they don't know how long you're going to live? Well.... Fight it. I guess?
May 21st, 2006 @ 5:18pm: I don't have much of a social life anymore. Everyone thinks I'm contagious. I'm not. This prednisone is horrible. I feel all types of sad emotions on it. Still not sure what is going on.

May 30th, 2006 @ 10:56pm: I'm out of the hospital! I'm off of these God-awful steroids! I'm done with being poked in the stomach, arms (veins), and spine with needles! I'm not stuck in a small MRI tub for 2+ hours. I started a chemotherapy treatment called Rituximab. They finally know what I have, but I don't know how to spell it and I need to wait for a blood test on Friday.


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May was a month where I was still in school and battling trying to find a diagnosis for my disease. I didn't write much in my journal this month, and I can only imagine that I was in/out of the hospital. This is the first time I had a diagnosis.

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